Just want to thank everyone for their prayers and support, especially over the last few days. I so appreciate everyone reaching out and asking how it went. I wasn’t trying to leave anyone hanging, so to speak, just still feel like I’m “recovering” from yesterday. It was a super long and trying day, as expected. But, good news, I did indeed get the first infusion of the PD1 Antibody whatever called “MK 3475”! And yes, I did see “I Am Legend” and yes, I do have a list of people I’m coming after if I become a zombie 😉 It only took a half hour for the infusion, which was awesome, and I felt no different after, which was also awesome. My oncologist stressed how rare it is for side effects with this drug, so I’m really relieved there. I mean, come on, I feel like most chemos are like only side effects based on what you hear.
A little Lancaster County humor, my dad sees the expiration on the chemo bag and goes, “Hey, they musta got it at Sharp Shopper!” Haha, nothing against Sharp Shopper, trust me, it’s our favorite place to shop.
So after the infusion, I had to run down for the PET scan. The PET scan always freaks me out. Why wouldn’t it? They are injecting me with radioactive material! Yikes. But after the injection, in the hour or so waiting period, I got to have such a nice chat with the sweetest tech ever. Seriously, she was so kind and just was such a sweet listening ear. I much prefer human interaction to sitting alone in a waiting area and she didn’t have to talk to me for as long as she did, but she did and I appreciated her.
I haven’t heard anything about the PET scan yet. I actually started bawling last night after we got back because I’m not sure I want to know. No good news has come from any of my scans at this point, so why would I really want to know what this one says? Maybe that sounds defeated or depressed, and maybe it is, but it’s truly how I feel right now. What good comes from knowing? But I will definitely update everyone when we hear anything.
The GREAT news is I am officially done with the steroids!! I really feel like they are messing with my body more than anything else at this point (and I gained 10 pounds in a week! ONE WEEK! I know, I know, it’s water weight and I shouldn’t worry about it, but hey, I’m still a girl!!) My oncologist thinks that I should soon be able to sleep again once they are out of my system. I look forward to that greatly as I think my sleeplessness is making everything a little harder to deal with. My brain is so foggy and I feel like it’s so easily overstimulated and I just can’t filter out distractions and things the way I could even a few weeks ago. It’s gotta be lack of sleep! I say all this as night is falling and I’m dreading another sleepless night. Oh well, what can ya do? At least today we had some fun today and I got to spend quality time with the kiddos!