Thanks to everyone who’s been asking how everything went yesterday, I really appreciate it! Things seem to be heading towards answers, well kind of. I saw my oncologist and based on all of the symptoms I’ve been having, (brain issues, headaches, vision changes, pressure in my head, loss of feeling in my feet, and a bladder that won’t fully empty) they are starting to think that the chemo itself may be “attacking”, for lack of a better term, parts of my nervous system.
This isn’t quite as alarming as it sounds, it just means I would need to be put on a low dose of steroids for as long as I’m getting the chemo, so quite possibly the rest of my life. The only way to know for sure if this is what’s causing all of my issues is by ruling out a few other things, such as spinal fluid issues or changes in my brain tumor. I’ll see a neurologist quite soon and have an MRI and MRA because there was an area of “interest” on my last MRI that may be another aneurysm or changes in my tumor. They also may need to do a spinal tap to check my spinal fluid for…whatever spinal taps check for.
I’m just taking it a step at a time, an appointment at a time. The good news was that neither my oncologist nor his fellow (resident?) thought that my symptoms were due to my brain tumor growing or changing, so that’s quite a relief! As odd as it sounds, I’d rather just keep that little turd in there and it be inactive than have to go in after it and all the junk that that entails.
I’ll also see an endocrinologist about my thyroid next week and hopefully get my MRA and MRI studies done then too.
Oh, and I’ve caught another cold.
Haha, what a life this is! It is certainly never boring, that’s for sure. For me, it’s so much easier when we have answers, even when the answers are hard. It’s particularly difficult for me when there are so many question marks and so many things up in the air. But I was told in the beginning of this by a very wise man that things like this either make you bitter or make you better. I’m choosing to go with better. With God’s help, this can be a time of spiritual growth, it doens’t just have to be a foggy mess of questions. No matter where I’m at in the physical part of this journey, I’m continuing each day to let God guide my steps, even when I cannot see at all in front of me.
Here’s my other source of comfort, my family. Here I’m getting some post-chemo cuddles from my boy ❤