So I am headed back to Penn today for the first time since my last chemo. It feels cool to know I don’t have to see my oncologist (as great as he is, I associate him with bad things lol) but I’m not exactly thrilled to be getting a spinal tap! They want to test my spinal fluid and also check that the pressure of the fluid is adequate? Or something… I guess they need to do this to rule out things before they can just chalk it up to either a side effect of the Keytruda or a side effect of having a brain tumor that has scar tissue around it. Not even exactly sure what result in hoping for but I’m certainly not thrilled to be getting this done although my neurologist assures me it’s not bad at all, that it’s just like getting an epidural, but I’m doubting he’s had either so what does he know!?
Anyway, I’ll get my port flushed, will have a visual field test (whatever that is), and will be getting a “lumbar puncture” (sciency term for spinal tap). I’m hoping I’ll be able to convince them to let my hubby get pics of the process because I’m super curious about it but know enough by now to stay away from Google images.
The hope is that this visual test and the tap will give us some insight as to why I’m getting headaches virtually all the time. I hate taking meds so I’m glad my neurologist wants to look into this, maybe if they find the cause they can fix it and I won’t have to deal with this anymore. Here’s to hoping!
And just in case you’re wondering, I did actually watch “This is Spinal Tap” last night. Even though it’s not about spinal taps at all… Eh, why not? Any excuse to watch a Christopher Guest movie. Same as I’d watch “Best in Show” if I was entering Buck in a dog show that next day or watch “A Mighty Wind” if I was gonna go to a folk music festival.
I need a life….
Anyway, will keep ya updated on what we hear!